Caregivers/Families of Nursing Home Residents
Abiding Hearts
Emotional support to parents, their friends, families and caregivers who are continuing a pregnancy that has a prenatal diagnosis of a fatal or non-fatal birth defect. Networks parents and grandparents with volunteers who have experienced similar situations.
Abiding Hearts, P.O. Box 5245, Boseman, MT 59717. Call (406) 388-8001; FAX: (406) 587-7197.
Advocacy Center for Long-Term Care
Provides services to consumer councils and their members through technical assistance to residents, families and staff in starting or improving councils. Workshops and training.
Advocacy Center for Long-Term Care, 2626 E. 82nd St., Suite 220, Bloomington MN 55425. Call (612) 854-7304; FAX: (612) 854-8535.
Alzheimer's Disease and Related Disorders Assoc., Inc.
Information and assistance for caregivers of Alzheimer's patients. Quarterly newsletter, literature, chapter development kit.
ADRDA, 919 N. Michigan Ave., Suite 1000, Chicago, IL 60611-1676. Call (800) 272-3900 or (312) 335-8700; TDD (312) 335-8882.
http://www.alz.org
mailto:info@alz.org
American Amputee Foundation, Inc.
Information, referrals and peer support for amputees. Hospital visitation and counseling. "Give A Limb" program.
Amer. Amputee Fdn., P.O. Box 250218, Little Rock, AR 72225-0218. Call (501) 666-2523; FAX: (501) 666-8367.
CAPS (Children of Aging Parents)
Non-profit membership organization dedicated to the needs of caregivers of the elderly. National network of support and offers information, referral and counseling.
CAPS, 1609 Woodbourne Rd., Suite 302A, Levittown, PA 19057. Call (800) 227-7294 or (215) 945-6900; FAX: (215) 945-8720.
http://www.careguide.net
CBGD Support Network
Support for families and caregivers of persons with Corticobasal Ganglionic Degeneration (a rare neurological disorder characterized by cell loss in the brain).
CBGD Support Network, c/o Theresa Roberts, 296 Ravenna Dr., Long Beach, CA 90803. Call (564) 434-3316.
mailto:trobertsz@aol.com
International Paraneoplastic Association
Offers support and education for persons affected by neurological paraneoplastic disorders (linked to the body's immune response to cancer. Includes paraneoplastic cerebellar degeneration, opsoclonus-myoclonus syndrome and Eaton-Lambert Syndrome.
Carolyn Lawrence, 3450 Jamul Highlands, Jamul, CA 91935. Call (619) 669-1039 (eve)
http://www.angelfire.com/sc/Paraneoplastic/index.html
International Waldenstrom's Macroglobulinemia Foundation
Provides support and information to persons with Waldenstrom Macroglobulinemia, their families and caregivers. Int'l Waldenstrom's Macroglobulinemia Fdn., 2300 Bee Ridge Rd., Suite 301, Sarasota, FL 34239. Call (941) 927-IWMF; FAX: (941) 927-7037.
http://www.iwmf.com
MGH Neurology WebForums
Online. Fosters online communication between patients, caregivers and physicians about various neurological disorders and related topics. Provides open forums where people can discuss medical issues freely, real time discussions in the Neurology Chat Room, a photograph collection, and "A Window on my Mind," where persons can read or write creatively.
http://neuro-www.mgh.harvard.edu/forum/
National Family Caregivers Association
Dedicated to improving the quality of life for family caregivers. Networks members together for support.
National Family Caregivers Assn., 10605 Concord St., Suite 501, Kensington, MD 20895-2504. Call (301) 942-6430 or (800) 896-3650; FAX: (301) 942-2302.
http://www.nfcacares.org
mailto:info@nfcacares.org
PLS Friends
Online. Opportunity for primary lateral sclerosis (a progressive neuromuscular disease) patients to share information and support via a mailing list. Fosters support and an exchange of ideas among PLS patients, their relatives, caregivers, and health care professionals.
http://www.onelist.com/subscribe/PLS-Friends
Well Spouse Foundation
Provides support and information to the well spouses of the chronically ill, educators, human service professionals and the public about the needs of spousal caregivers.
Well Spouse Fdn., 610 Lexington Ave., Suite 208, New York, NY 10022-6005. Call (800) 838-0879 or (212) 644-1241; FAX: (212) 644-1338.
mailto:wellspouse@aol.com
http://www.wellspouse.org

