Online. This website contains links to organizations, mailing lists, feedback, patient websites and searches for a large variety of cancers.
http://www.medinfo.org/

Online Internet support group for persons affected by adenoid cystic carcinoma (ACC), a very rare head and neck cancer, and their families. Offers online forums where members can compare treatment protocols and information, and offer support. Write: Aden-Cyst Fdn., P.O. Box 121, Maybee, MI 48159-0121. Call Nancy Whitman (734) 529-5751; FAX: (734) 242-3035.
http://www.paonline.com/knipped/flyer.htm

Support for parents of children and adolescents with cancer, their family members, and adult survivors of childhood cancer. Links parents, families and groups to share feelings, exchange information, identify patient and family needs. Health and education professionals also welcomed.
Candlelighters Childhood Cancer Fdn., 7910 Woodmont Ave., Suite 460, Bethesda, MD 20814. Call (800) 366-2223 or (301) 657-8401.
http://www.candlelighters.org
mailto:info@candlelighters.org

For women who took DES during pregnancy and their children.
Write: DES-Action USA, 1615 Broadway, Suite 510, Oakland, CA 94612. Call (510) 465-4011; FAX: (510) 465-4815.
mailto:desact@well.com
http://www.desaction.org

For DES-exposed women, with a special focus on DES cancer issues. Provides patient support, research advocacy and medical/legal resources.
DES Cancer Network, 514 10th St., NW, Suite 400, Washington, DC 20004. Call (800) DES-NET-4; FAX: (202) 628-6217.
http://www.descancer.org
mailto:desnetwrk@aol.com

Support network to help patients and families dealing with familial polyposis and hereditary colon cancer.
Write: IMPACC, P.O. Box 11, Conyngham, PA 18219. Call Ann Fagan (717) 788-1818 (day) or (717) 788-3712 (eve); FAX: (717) 788-4046.
mailto:impacc@epix.net

Acts as a bridge starting before laryngectomy surgery through rehabilitation, and for practical and emotional support.
Int'l Assn. of Laryngectomees, 7440 N. Shadeland Ave., Suite 100, Indianapolis, IN 46250. Call (317) 570-4568; FAX: (317) 570-4570.

Mission is to improve the quality of life of myeloma patients while working toward a cure. Educational and supportive programs, information packets, phone support, newsletter. Networks patients together for mutual support. Referrals to self-help groups.
International Myeloma Fdn., 2120 Stanley Hills Dr., Los Angeles, CA 90046. Call (213) 654-3023 or (800) 452-CURE; FAX: (213) 656-1182.
mailto:TheIMF@aol.com http://www.myeloma.org

Online. Offers support and education for persons affected by neurological paraneoplastic disorders (linked to the body's immune response to cancer. Includes paraneoplastic cerebellar degeneration, opsoclonus-myoclonus syndrome and Eaton-Lambert Syndrome.
Carolyn Lawrence, 3450 Jamul Highlands, Jamul, CA 91935. Call (619) 669-1039 (eve)
http://www.angelfire.com/sc/Paraneoplastic/index.html

Provides information about kidney cancer to patients and doctors. Sponsors research, and advocates on behalf of patients with government and insurance companies. Newsletter, information and referrals, literature, conferences.
Kidney Cancer Assn., 1234 Sherman, Suite 203, Evanston, IL 60202. Call (847) 332-1051; FAX: (847) 332-2978.
mailto:office@nkca.org

Mutual support for patients, family members and friends coping with leukemia, lymphoma, multiple myeloma and Hodgkin's Disease. Meetings held once a month.
LSA, 600 Third Ave., 4th fl., New York, NY 10016. Call Donna Moss (212) 450-8834; FAX: (212) 856-9686.
mailto:MossD@leukemia.orghttp://www.leukemia.org

Mutual support and discussion for persons facing a life-threatening illness. Open to relatives and friends.
Make Today Count, c/o St. John's Regional Health Center, Mid-America Cancer Center, 1235 E. Cherokee St., Springfield, MO 65804-2263. Call Connie Zimmerman (800) 432-2273 (Mid-America Cancer Center); FAX: (417) 888-8761.

Online. Founded 1997. Brings men together who have been diagnosed with male breast cancer so they can share experiences, gain information, and support each other.
http://www.interact.withus.com/interact.mbc
mailto:malebc-request@listserv.acor.org

Support and education men with prostate cancer to enable them better understand their options and to make informed decisions. Phone support, information and referrals, support group meetings, education and support visitation program.
Call the American Cancer Society at (800) ACS-2345.
http://www.cancer.org

Online. Fosters online communication between patients, caregivers and physicians about various neurological disorders and related topics. Provides open forums where people can discuss medical issues freely, real time discussions in the Neurology Chat Room, a photograph collection, and "A Window on my Mind," where persons can read or write creatively.
http://neuro-www.mgh.harvard.edu/forum/

Peer-to-peer support through networking with others who have carcinoid, a rare form of cancer.
Nat'l Carcinoid Support Group, P.O. Box 44233, Madison, WI 53744-4233.
mailto:jean@mick.com
http://members.aol.com/thencsg

Grassroots network that works on behalf of persons with any type of cancer. Mission is to lead and strengthen the survivorship movement, empower cancer survivors, and advocate for policy issues.
National Coalition for Cancer Survivorship, 1010 Wayne Ave., Suite 505, Silver Spring, MD 20910. Call 888-650-8868; FAX (301) 565-9670.
http://www.cansearch.org
mailto:info@cansearch.org

Promotes education and awareness re: ovarian cancer for patients, families, and medical community. Information and referrals, conferences, literature, conferences, phone support. Networking.
National Ovarian Cancer Coalition, 2335 E. Atlantic Blvd., Suite 401, Pompano Beach, FL 33062. Call (954) 781-3500; FAX: (954) 781-3525.
mailto:ovca@aol.com
http://www.ovarian.org

Emotional support for persons with nevoid basal cell carcinoma, a very rare condition.
Write: c/o Susan Charron, 162 Clover Hill St., Marlboro, MA 01752. Call (508) 485-4873.

Provides support and advocacy for prostate cancer patients, their families and general public at risk. Information relative to the advancements in the detection, diagnosis, evaluation and treatments of prostate cancer.
PAACT, P.O. Box 141695, Grand Rapids, MI 49514-1695. Call (616) 453-1477; FAX: (616) 453-1846.
http://www.osz.com/paact
mailto:pca@pcapaactinc.com

Mutual support for women with breast cancer. Reach to Recovery Discussion Groups are a local outgrowth of Reach to Recovery Program, which in most areas is a one-to-one visitation program but in some areas is a support group. Contact your local or state chapter of American Cancer Society at (800) 227-2345 to determine availability of such groups.

Mutual support for wives and partners of men with prostate cancer. For information on local groups, contact the American Cancer Society (800) ACS-2345.
http://www.cancer.org

18 affiliated chapters in AL, DE, FL, GA, LA, MD, NJ, NY. A national African-American breast cancer survivors support group that offers support, education, advocacy, outreach, training and research.
SNI, 8787 Woodway Dr., Suite 4207, Houston, TX 77063. Call (713) 781-0255; FAX: (713) 780-8998.

10 affiliated groups. Information and support for persons concerned with any type of thyroid problem, including hypothyroidism, hyperthyroidism, goiter, thyroid lumps or nodules, postpartum thyroiditis and cancer.
TFA, Ruth Sleeper Hall, RSL 350, 40 Parkman St., Boston, MA 02114-2698. Call (800) 832-8321; FAX (617) 726-4136.
http://www.tsh.org
mailto:info@tsh.org (thyroid questions) or admin@tsh.org (administration)

Mutual support, information and education for persons with prostate problems (including cancer), their families and friends.
Us Too Int'l, 930 N. York Rd., Suite 50, Hinsdale, IL 60521-2993. Call (800) 80-US-TOO ((800) 808-7866) or (630) 323-1002; FAX: (630) 323-1003.
http://www.ustoo.com
mailto:ustoo@ustoo.com

Provides sharing of support, information and coping skills for families affected by xeroderma pigmentosum. Promotes research into finding a cure. Summer Sundown Camp for patients of all ages and their families.
XP Soc., Box 4759, Poughkeepsie, NY 12603. Call (914) 473-4735.
mailto:caren@xps.org
http://www.xps.org

Information and peer support for breast cancer patients and their families during all stages of the disease. Community outreach to educate people on early detection.
Y-Me, 212 W. Van Buren St., Chicago, IL 60607-3908. Call (800) 221-2141 (24 hrs) or Spanish: (800) 986-9505 (24 hrs); FAX: (312) 294-9598.
http://www.y-me.org/